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  Register Now for the 3rd Annual Zane’s Run!

  Registration is now open for the 2011 Zane’s Run! The 3rd Annual Zane’s run will be held on Sunday, September 25, 2011 at Sugartown Elementary School in Malvern, PA. Register online or download a printable registration form. Continue reading →

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  Check Out Photos From 2009′s Race

  View photos from Zane’s Run by visiting the photo page!

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  Consider Becoming a Sponsor

  The purpose of Zane’s Run is to spread awareness and raise money to support families with children who have been diagnosed with Spinal Muscular Atrophy, or SMA. Please consider sponsoring this event. Continue reading →

Zane’s Run Will Be Held Rain or Shine

Zane, a beautiful baby girl, was diagnosed with the disease SMA, Spinal Muscular Atrophy.  SMA is the leading genetic killer of infants. It is a terminal genetic disease that results in the loss of nerves in the spinal cord & the weakness of the muscles connected with those nerves. SMA impacts the ability to walk, stand, sit, eat, breathe & even swallow. Typically, babies with SMA Type 1 have a life expectancy between 1-2 years. Constant monitoring & medical assistance is vital. The proceeds of this event will go to Families of SMA, who support families like Zane’s. To learn more about FSMA please visit: www.fsma.org.

Spinal Muscular Atrophy is the number one genetic killer of children under the age of two.  SMA is an inherited and often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing.  Two new-born children are affected each day in the United States, approximately 1 in 6,000 live births.  One in every 40 people carries the gene that causes SMA, which means there are more than seven million carriers in the United States alone.  Currently there is no treatment or cure.

Families of SMA is an international nonprofit organization founded in 1984 with the mission to find a treatment and cure for SMA.  FSMA is made up of more than 65,000 members and supporters and has funded more than $50 Million in leading research programs since its inception.

On February 19, 2009, Zane Schmid, the beautiful daughter of Keith and Hillary Schmid, and the twin of Avery Schmid, was diagnosed with Spinal Muscular Atrophy, Type I. Although Zane passed away four months later, the Schmid family remains hopeful that they will defeat the disease, and it has now become their mission to “educate, prevent, and help find a cure for SMA.” For more information about Zane please visit www.sweetbabyzane.com.